Bad Blogger

So, 10.5 months late, I should announce that our third miracle, Timothy Phoenix was born on November 15, 2017. He was born on his own terms, via VBAC two days before our scheduled C-section. He is our perfect rainbow baby. Came via a smooth, uneventful labor and delivery. Timothy (or T-bone, as Dad calls him) is a fat little ball of love, with an infectious laugh, a comical mop of dark brown hair, and the most irresistible pair of cankles I’ve ever seen. ❤ ❤ ❤

Here are a few photos that successfully converted to JPEGS (from Apple’s stupid new HEIC format…I’m going to go ahead and blame that for my slow post…):

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C. Samuel is the perfect older brother. Patient, gentle and loving – which is a little surprising, given how energetic and crazy he is capable of being when he’s not tending to his brother!

20 weeks, and Jane’s fire truck!

Today marks 20 weeks into this rainbow pregnancy! Things are good.

We had our 20 week ultrasound on Monday and I haven’t heard anything back, so hopefully that’s a good sign?

And C decided he needed to hear Baby’s heartbeat more than once a month and bought one of those Fetal Doppler things. It’s funny, because I think I felt the baby on Thursday morning… But putting my feet up on the couch and letting C find Baby is a nice little way to end the day, so I won’t complain! 😉

Best of all, Jane’s fire truck went up at the park today!

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C. Samuel approves of the new fire truck. Yesterday, when we visited while it was halfway assembled, he fretted that it was stuck in the sand, saying “We have to drive it to Baby Jane Margaret.” He was worried that she wouldn’t get to see it. ❤

As I am finishing up this post, Rainbow Baby has decided to start rocking and rolling (which at 20 weeks feels like barely anything…but still!)

15 weeks, C’s Birthday and SoCal IVF Clinics on the radio

Today marks 15 weeks along for this pregnancy. It feels good to be well out of the first trimester, but also a bit anticlimactic, since we know all too well that it doesn’t guarantee a healthy baby at the end.

This is one of those thoughts that I have frequently, but generally try to keep to myself so as not to bum everybody out. For example, last weekend, at a kid birthday party, I met another mom of a three-year-old. Shortly after establishing that we were both expecting babies this fall, she made a seemingly innocuous observation, “Isn’t pregnancy so much less stressful the second time around? The first time I was worried about everything, but this time, I just get to relax and enjoy it.”

I felt like I was in a sitcom where I can picture the outcome of either possible response:

“Well, actually, this is my fourth pregnancy; most recently, my daughter was stillborn at 41 weeks last July, so no, I don’t actually feel less stressed this time around.”

Um. Probably not the best way to make a new friend.

<<<SCREECH!!! Rewinding video footage…>>>

“Isn’t pregnancy so much less stressful the second time around?…”

“Mmm hmm. C. Samuel keeps us very busy this time around.”

It wasn’t technically a lie, but it also didn’t drop a giant shit on the day of someone who was just trying to make polite conversation at a kids’ party.

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In other news, C. Samuel turned 3 last week. Here are some obligatory cute pics from last weekend:

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Happy boy at his birthday party, wearing his “birthday hat”

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Riding his new bike on the boardwalk

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Sharing his toys with Jane on Memorial Day

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Lastly, while driving home today from Discount Tires, I got sucked into an episode of Reveal on my local public radio station, and ended up sitting in my carport for 40 minutes to hear the rest.

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I don’t understand why my tire blew out yesterday?! (C. took this pic of one of my ‘good’ tires, post blowout…)

The episode was about a highly suspicious IVF clinic in LA, and talked about the issue of inflating SART stats, in particular by putting in two or more embryos in young (under 35-years-old) moms without a prior history of failed IVF cycles.

The story certainly wasn’t perfect. (Most notably, I didn’t feel like they fully considered the financial pressures on couples that choose a multiple embryo transfer on their first try.) But it hit on several important ethical concerns that arise as a result of trying to sell services for something so emotionally-charged, expensive, and with such an uncertain outcome.

I also liked the fact that in the radio version (though not in the written article), they presented the head RE at our IVF clinic, Reproductive Partners, as a model of ethical practice (not that it applied to us, since we never made it transfer).

Here’s a written version of the story:

https://www.google.com/amp/s/www.revealnews.org/article/when-pregnancy-dreams-become-ivf-nightmares/amp/

11 weeks, NIPT, and Outlander spoilers

Sorry it’s been awhile since I’ve checked in. Last week was finals week, and the weeks leading up to it were a bit hectic, as usual.

A week ago, we hit the 10 week mark, which meant I could do a phone consult with the genetic counselor and have my blood drawn for the Non-Invasive Pregnancy Test (NIPT, which I’ve written about on this blog before, here).

I scheduled my appointment for the earliest slot they would let me, on Monday afternoon, and drove to the hospital for my blood draw the same day. As we have in each pregnancy, we checked the box to learn the gender of the baby at the same time. Then, we anxiously awaited the results. (The genetic counselor had said it would be “about a week”, but since I knew I had made it in time for Monday’s FedEx pickup, I was hopeful for a result on Thursday or Friday.) More so than with our previous pregnancies, I worried that this baby might have a chromosomal abnormality, both because of my age (my baseline risk now – at age 38 – is 1 in 50), and because after losing Jane, we no longer feel immune to even improbable adversity…

Thankfully, I had a full week of to distract me from thinking too much about it, with a speaking gig at a chemistry symposium at a nearby university Tuesday, and tickets to Hamilton (!) in San Francisco on Wednesday night. C had accrued enough points on his Ritz Carlton business card for an overnight stay, so we spent Wednesday night in style in the city before returning to reality. While away, I checked my email every 10 minutes for the message from Kaiser, which I finally got on Friday morning in the airport bathroom…

The subject line was “Good News!”, which came as no small relief. I waited until I was sitting with C to open the email and learn the gender of our little peanut.

If you had asked us before Friday what our preference was, we would have told you we preferred a girl – not as a replacement for Jane, but maybe as another chance at the imagined future we felt that we had lost with her: mother-daughter mani-pedis and father-daughter dances, a trip to England to visit Jane Austen’s house, C walking her down the aisle… On the practical side, a baby girl would also be able to make use of all the never-worn, adorable pink outfits and dresses still hanging in Jane’s closet.

The letter showed that we have a chromosomally-normal boy! And we are honestly so excited. We love the idea of a brother for C. Samuel (I actually had wished that Jane was a boy before I knew!), and I feel very comfortable cementing my identity as a “boy mom”, which seems easier in many ways. And while we aren’t totally ruling out the possibility of a third child, I have to admit that there is something romantic about the idea that Jane was our girl, and that we won’t have another.

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In other news, in between late nights grading, I’ve been making my way through the Outlander series on Starz. It’s my guilty pleasure on nights when C isn’t home or goes to bed early. I really like the main characters (especially Sam Heoghan’s Jamie Fraser, sigh!) and the sets and costumes. The story isn’t as compelling or the dialog as clever as, say, Game of Thrones, but I enjoy it enough to have purchased the first two seasons on Amazon. That said, if you are easily disturbed by violence, you’d probably want to take a hard pass. Continuing with the GoT comparison, Outlander is not nearly as skull-crushingly gory as GoT…but I found several violent scenes to be at least as emotionally disturbing as anything I’ve seen on GoT.

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I just had to add a photo of Heoghan (source and more photos)

At this point, I should give a SPOILER ALERT. If you think you might want to watch Outlander, or you are watching and haven’t yet made it into Season 2, Episode 7, then for heaven’s sake, don’t read further!

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So, for those of you still here, the reason I bring up Outlander is that a) I just watched S2 E7 Friday night, and b) stillbirth figured prominently in the episode. It’s actually not the first time I’ve seen a stillbirth on TV since losing Jane. The first was in the series premier of This is Us. (I don’t even feel bad about spoiling that one, since it’s like halfway through the SERIES PREMIER and is not even the big surprise of the episode!)

I felt both portrayals were well done, and yet, neither initially felt like our experience.

In This is Us, the expecting couple goes in to deliver their babies (like us), who are triplets (not like us), and then have complications during delivery that result in the loss of one of the babies. We never see the baby that was stillborn, nor do we see the mother’s initial reaction to the news until a later episode. What we do see is a touching conversation between the obstetrician who delivered the babies and the young father. We see the father’s initial confusion and denial, and learn that the obstetrician had a stillborn child that motivated him into choosing to pursue obstetrics. The moment felt very real; the message, about making lemonade out of “the sourest lemon life can give you”, while undoubtedly hokey, feels honest and welcome, especially coming from someone who has been there.

In Outlander, the expecting mother is subjected to an intense situation that spurs early labor (not like us), then she is semi-unconscious, confused during delivery (not like us), and only learns that her child is stillborn after the delivery is over (not like us). The whole sequence took place in the first few minutes of the episode, and left me feeling very little. I felt guilty for eating chips and salsa through what I felt should have been a very emotional scene for me, but I didn’t feel much empathy for the character (who I really like and am generally very invested in). Another variable that undoubtedly affected my experience was the inclusion of a flash-forward at the start of the episode, that shows the same character with her future child. So we know from the beginning that she will eventually go on to have another child.

Then, as she is retelling the story to her husband (who wasn’t present for the birth), we see in a flashback that she in fact did get to see and hold her baby…

And there it was – the ‘real’ moment that got me. I cried as she lovingly and carefully examined her baby daughter’s hands and feet, remarking on the color and texture of her hair. I cried as she cradled her, and sang to her. And I cried especially hard when, after holding her daughter for hours, she reluctantly handed her over to be prepared for burial. It was heartbreaking, and beautiful, and exactly how I remember feeling.

Is there a sudden spate of authentic stillbirth story lines in television these days, or were they always there and I just wasn’t paying attention? Either way, I’m grateful to see elements of our experience portrayed for a wide audience. In both cases, the friends and loved ones of the grieving parents responded so well – never minimizing the loss (even in This is Us, when the couple had two healthy babies to take home); in the case of Outlander, they gave the baby a name, commented on how beautiful she was, and asked to hold her – like our loved ones did for Jane. ❤

Ultrasound and fire truck update

Well, the spotting increased to full-on bleeding Wednesday afternoon, so C and I both canceled each of our evening plans and stayed home to mope. The bleeding slowed overnight, then started again Thursday afternoon, this time accompanied by cramping.

Ever the pragmatist, I emailed Dr. R before driving home from work:

“In the last hour I’ve started cramping and bleeding more heavily. Do you think I should still come in tomorrow if it continues/increases? Should I try to save any tissue for testing?”

She replied that I should still come in, and that I should save any tissue if I could.

Again the bleeding slowed that evening and overnight.

On Friday I got up and got ready for work. I taught my class (OChem II), replied to emails, prepped for Monday’s class, and represented my department at an event for prospective students. As I realized that it was time to leave, a feeling of dread settled into the pit of my stomach. I said a grim goodbye to my friend/department assistant (who is ‘in the know’ about everything going on), and drove home to meet C.

C and I drove to Kaiser, making small talk. I mentioned Dr. R’s email, and speculated that she might recommend a D&C so we could test the embryo and see if there was a genetic reason why things went wrong.

We arrived, checked in, and waited. A nurse took me back in to get my weight, blood pressure and urine sample, then brought me back to the waiting room because Dr. R was behind schedule and she thought I’d be more comfortable waiting there.

Eventually the nurse came back for us and as we walked down the long hallway to the very last exam room, I leaned over to C and told him it felt like we were walking to the firing squad. I undressed and sat on the exam table, feeling both literally and figuratively naked.

Dr. R came in and hugged us both. She said how nice it was to see us, that it had been too long. She asked if I felt pregnant, and I explained that the only pregnancy “symptoms” I had were feeling weepy and very tired…both of which could easily be attributed to depression over our apparently failing pregnancy.

Mercifully, she suggested that we postpone the usual prenatal visit stuff and skip straight to the cervical exam and ultrasound.

Dr. R did her thing as gently as humanly possible. She realized that the probe was disconnected from the ultrasound machine and had to start over. She tried again and focused in on the dark oval (the gestational sac) and said, matter of factly,

“I see a heartbeat!”

What?!

She carefully showed us – skeptical as we were – what she was looking at. She checked the rate and declared it to be a normal heartbeat, then she measured the embryo, twice, and showed us that it was measuring 6 weeks 5 days. (We were at 6w6d by my count.)

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Dr. R was so visibly happy; she just about started crying. Meanwhile, C and I displayed no emotion at all. We were (and still are) dumbfounded.

I had already been anticipating how I would tell my department chair that I needed to change my fall teaching schedule back to a normal schedule. (I had jumped the gun and moved some courses to accommodate a November due date, prior to student registration starting last week…) I had planned to console myself with a delicious cadillac margarita at the Mexican place behind our house, watch the depressing movie about stillbirth I’ve been wanting to see, and ugly cry on the couch by myself…

That I could still be pregnant was, and is, so unreal.

Of course, we know we’re not out of the woods – that we will never be out of the woods.

But that doesn’t stop this me from feeling like getting this far is a miracle.

Dr. R suggested I lay off the aspirin for a couple days and then start back on it again Monday and see how it goes. She said I could go to a ‘normal’ prenatal visit schedule and come back in a month…or that I could come back sooner if it would help me feel less stressed. C answered for me that of course I would want to come back. (He told her I’d just move in to the clinic if she’d let me!) So Dr. R set up an appointment for next Friday, and said we could “play it by ear” after that. It sounds like she plans to let me come in as often as I want!

We talked about other things, including how (and when) I should deliver, but it was pretty much consistent with what she had already recommended when we met back in September.

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In other news, on Thursday I heard back from the sales rep for Kompan, the Danish company that we contracted to make Jane’s memorial fire truck. He said he had just confirmed that the pieces of the truck had arrived at our local Parks & Recreation office! We don’t know when they’ll get around to assembling it and removing the current fire truck, but this was unexpected good news!

He went on to say that while he didn’t know all the details, our story had touched the hearts of many of the people at Kompan who worked to make it happen. He shared that many years ago, he had lost an adult son (age 25), and that he was honored to be able to contribute to Jane’s memorial. ❤

Here were the plans for the memorial again. We can’t wait to see it in place at our local park!

Spotting

Thanks to all of you who wrote reassuring comments. (Thanks to those of you who left empathetic “Oh, shit!” comments too! Validation of my feelings is always welcome!)

On Monday, I got a nice message from Dr. R (my obstetrician for Jane, and for this pregnancy):

Hi, K! Please pardon the delay, I have been out of the office. Usually, the very earliest we can definitively see a heartbeat is when the fetal pole measures at least 6 weeks (your fetal pole measured 5+4 weeks). So, things can be totally normal at this stage, the ultrasound was just a bit early. The good news is that there is a tiny fetal pole and a gestational sac which is exactly what we should see at this stage. Also, the gestational sac measured less than 2 cm. This is usually the cut off when we can visualize fetal cardiac motion. So, once again, probably too early. As far as I can tell, your hormones rose great when checked and you have a pregnancy in the right spot (the uterus and not an ectopic pregnancy). When I see you this week, if all is progressing well, we should see a heart beat then. This week will seem like forever for you, please keep the faith! See you soon! 🙂 Dr R.

Have I mentioned how much I love Dr. R? (Pretty sure I have, but it bears repeating!)

Unfortunately, as the title of this post suggests, I started spotting on Sunday. It’s not heavy, but it seems to be most noticeable in the evening – presumably when the progesterone from my suppositories starts wearing off – which I think can’t be a good sign. While I’ve spotted in my previous pregnancies (with C. Samuel, with Jane, and even with this pregnancy), it’s only been at 4.5-5 weeks.

So here I am, still waiting for Friday’s ultrasound, hoping that I’m wrong to think that this pregnancy is all but over…

 

Inconclusive ultrasound

Today, at 5 weeks 6 days, I went in for my ultrasound. More precisely, I raced from work to my ultrasound, where I arrived 3 minutes late. C was out of town for a meeting in NorCal, and was texting me to see when he should step out of his meeting to Facetime me…

They got me back into the room quickly, and when the nurse practitioner came in, she said it was fine to Facetime with C, and I called him up. She said that my blood tests had looked really good, and she wished for good news for us, since we “have had enough heartbreak.”

The good news:

  • We saw the gestational sac.
  • It is located in the uterus.
  • It measured at 5 weeks 4 days (within the error range of the measurement, according to our nurse practitioner).
  • We saw something resembling an embryo, which had something resembling a yolk sac, and something resembling a fetal pole, which measured at about 5 weeks 5 days.

The less-than-good news:

  • We did not see a heartbeat. Our NP prepared us for this even before she went in, so we know it doesn’t mean anything…but with C. Samuel we saw the heartbeat at 5 weeks 5 days, and we would really have liked to see it today.
  • More alarming was the nurse’s demeanor. She clearly didn’t like the appearance of the embryo, saying “I would like to see it more defined at this stage.” She reassured us that “I have seen pregnancies that looked like this at this stage, and then developed into healthy pregnancies,” which, frankly, wasn’t very reassuring at all.
  • Ultimately, she gave us 50:50 odds that this pregnancy would progress.

So now we wait until next Friday, praying that this coin flip goes our way…

Telling Jane the news

Last week, I got two more betas. Here’s a summary:

Date/time DPO Beta-HCG Doubling time
Fri 3/17 10:30 am 13 66 mIU/mL  
Mon 3/20 11:30 am 16 370 mIU/mL 26 h
Wed 3/22 10:30 am 18 791 mIU/mL 43 h
Fri 3/24 12:30 pm 20 2165 mIU/mL 34 h

 

Everything looks good, so now we wait for my first ultrasound on Friday afternoon (at 5 weeks, 6 days past IUI).

As if it were a sign from Jane, the wildflowers (whose seeds we had as a takeaway from her funeral), which had previously been ravaged by caterpillars and drought, just bloomed for the first time last week.

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On Saturday, the three of us (C, C. Samuel, and I) went to visit Jane. My mom had suggested that lilacs would be lovely at this time of year, and she was right.

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C. Samuel also picked out an anemone to give her.

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We told her again how much we love her, assured her that no other baby could ever take her place in our hearts, and, as if to convince her, C. Samuel left her a few of his goldfish crackers.

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Blogiversary, beta update, and winter cuteness

After I posted our news on Friday, I got notified by WordPress that it was the four-year anniversary of my blog. That makes it five years – give or take – from when C and I first started trying to conceive!

That went by fast – sort of.

I feel a little bit sorry for that little newlywed me, who actually argued with my dashing new husband about when to start trying…so we could. Time. My. Maternity. Leave.

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Mr. Obama finds my naive ideas about family planning hilarious!

But early pregnancy loss, life-threatening motor vehicle injury, crushing infertility diagnosis, and stillbirth notwithstanding, I still can’t help but focus on the positive.

  • I married a wonderful man who doesn’t have a self-pitying bone in his body.
  • We have a gorgeous son.
  • We have amazing friends and family who have supported us through everything.
  • Contrary to the predictions of three different REs, I have managed to get pregnant four times.

 

So while things have not quite gone according to plan, I’m proud of where we’ve come in the last five years, and hopeful for what the next five will bring!

 

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For those of you who are counting, my beta came back today at 370 mIU/mL. That corresponds to a doubling time of about 33 hours.

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Looks really good!

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I take another test on Wednesday.

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Lastly, for your viewing pleasure, here are some sweet pics of C. Samuel from our ski trip to Park City over my Spring Break:

Look who has nicer ski gear than me!

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Enjoying the view from the lift.

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C. Samuel wanted to hold our hands while skiing. ❤

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Relaxing in the hot tub after a long day!

Bulletproof

My blog is semi-private; I try not to use names or give overtly self-identifying information, but I’ve also shared the blog with many friends and family ‘IRL’. This means that I sometimes have to make difficult decisions about what and when to share things on the blog…

Like when we find out that we’re pregnant.

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On Tuesday (10 dpo), I decided to take a pregnancy test. No line. Or maybe a whiff of a line. Could easily be residual trigger shot.

On Wednesday (11 dpo), same thing. Maybe a bigger whiff. Or maybe I was deluding myself.

On Thursday (12 dpo), same. Definitely not pregnant. But when I set it next to the previous two, and squint at it, I kind of see a line. I tell C. “Hey, we’re probably not pregnant, but there’s a whiff of a line. Pretty sure it should be darker at 12 dpo. It’s probably nothing, but I thought you should know.”

On Friday (13 dpo), there is a very faint line. Darker than the previous line, but lighter than I think it “should” be. I decide to use one of the expensive First Response tests. There is definitely a line. At work, I decide to email the nurse practitioner and Dr. Y to see if I should do the blood test a day early. Both reply and say I should.

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10 dpo (top) through 14 dpo (bottom)

In between afternoon meetings, I drive to Kaiser for a blood draw. Juan-the-phlebotomist draws my blood and explains that a courier will come and deliver my sample to the nearby hospital for testing, and I should get results in 2-3 hours. After drawing my blood, he lines the tape with a piece of gauze for pain-free removal later, and folds the tape into a little tab to make it easy to pull off. On my way out, I tell the receptionist that Juan is the absolute best phlebotomist I’ve ever had. I return to work and to my meetings.

After my meeting, I check my email and see that there is a new test result. My HCG is 66 mIU/mL. I check on betabase.info. It’s slightly below the median value for 13 dpo, but well within the expected range. I click on a link and discover for the first time that betabase has histograms of beta values for each day past ovulation! My beta value is comfortably in the middle of the distribution.

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So, we’re pregnant.

Conventional wisdom says that we should wait to tell people, but how long?

  • Until we get a few beta values and see that the doubling rate looks reassuring? 
  • Until we see a heartbeat?
  • Until we get a ‘normal’ genetic test result?
  • Until we pass the first trimester?

 

We know better than most that none of those things are a guarantee of a healthy baby at the end. So do we wait until the baby’s out? Probably not practical.

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I thought of a scene from an episode of Speechless. (If you haven’t seen this show, go watch it on Hulu, or abc.go. It’s adorable – like Malcolm in the Middle with a special needs kid.)

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In the scene, the dad on the show (his name is Jimmy) is explaining to his middle son why he doesn’t care what other people think, and says that after getting the news that his oldest son will never walk and do other stuff, and then making it through and seeing that same son grow into an incredibly cool person…he’s kind of like, what’s the worst that can happen? Here’s the full scene:

 

I feel kind of like Jimmy. If we tell everybody we’re pregnant after the first pregnancy test, what’s the worst that can happen? We lose the baby and have to tell everybody our sad news?

Yeah, and?

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At this point, we’ve shared awful news with our friends and coworkers and family and bloggy friends. We (and they) survived.

We’re bulletproof.